Halo entered the world far earlier than expected, carrying more battles than any newborn should. She was born with spina bifida myelomeningocele, hydrocephalus, Chiari malformation II, hypoxic ischemic encephalopathy, laryngomalacia, and global developmental delays. Her first seven months were spent in the NICU, undergoing more than ten surgeries before she ever saw home.

 

But Halo is more than her diagnoses. She is joy. She is resilience. She is the spark behind this entire resource hub.  Halo is five years old, laughing, learning, and proving every day that medically complex children are capable of incredible things.

 

She’s grown because of the very services, therapies, equipment, and community support you’ll find throughout this resource hub. She is living proof that early help, compassionate providers, and a determined family can change a child’s entire story.

 

Halo is the reason this space exists.

And as her mother, I want you to feel encouraged. I want you to feel seen. I want you to know you’re not walking this road alone.

 

From one caregiver to another; there is hope here.